Chrissy is on day 14 of chemo. this is her 2nd round of 6 weeks. It's a bit tougher then before because she never fully recovered from her first round of chemo. Her white count is decreasing, so we are watching that carefully. If she feels well enough and we have the doctors OK. Chrissy will be accompanied by family and cousins to Florida in time to celebrate Chrissy's 22nd. birthday. Please keep her in your prayers.
10/26/2002 POSTED BY FRIEND
Since the last update, Chrissy has finished her 6 weeks of chemo on Sept. 17th. She and has been on an alternative therapy program to detoxify her since. Her MRI on Sept 23rd. showed her tumor to be less infiltrating which is what the chemo was supposed to do, so that is good !!! She will have another MRI on Oct. 23rd. Providing her blood work comes back OK, she will start round 2 of another 6 weeks of chemo, Her white count is down & she has a nasty cold right now. If she feels strong enough Chrissy & her family will be traveling to Florida on DEC 1st. Chrissy will be celebrating her 22nd. birthday in Disneyworld on DEC. 2nd. If anyone would like to send Chrissy a birthday wish, her e-mail is chrissyscrusade@aol.com and I will print them out for her and give them to her on her birthday. For birthday cards please send an e-mail to request address.
9/01/2002 POSTD BY FRIEND
Chrissy is continuing to have more energy. Her appetite is good and she has a little movement in her hand. She is getting home therapy (physical and occupational) three times a week. The family went to their summer cottage this weekend and at a nearby fair, Brad Paisley was appearing. Chrissy acquired a meet and greet pass and her mom accompanied her. She got to meet not only Brad but his fiancee/girlfriend Kimberly. She didn't stay for the concert. Chrissy is on day 28 of her chemo treatments. At the end of her 42 day treatments, Chrissy is going to try alternative therapy until her next round of chemo.
August 25, 2002 POSTED BY FRIEND
Chrissy has been feeling a little stronger. She has been on the steroids along with chemo. Her appetite has improved. They have stopped her radiation treatments because of the fatigue and reaction. She will continue her chemo treatments. She's on day 18 of 42 days of chemo. Last night she stayed overnight with friends for the first time since the onset of her illness. The family was disappointed that the Terry Fox Run/Walk was cancelled this past week due to inclement weather. They had prepared specially imprinted t-shirts for the team who were going to accompany Chrissy. When word came the walk was cancelled, the family all donned their t-shirts and took Chrissy out for the evening to help her forget about her illness.
August 11, 2002 POSTED BY FRIEND
The benefit was very successful. It began at 12 noon and was over at 2 a.m. Over 700 people attended including Chrissy and her family. Chrissy had a great time, staying until the end at 2 am. She is very tired today. Today was day 5 of 42 consecutive days of chemo treatments. Radiation starts tomorrow. If Chrissy feels okay, the family will drive up to their old campground next weekend for the day to see old friends.
August 5, 2002: POSTED BY FRIEND
Chrissy's results from her recent biopsy at Children's Memorial (CM) came back today and the doctors at CM agree with the first diagnosis. However, the Mayo clincic is going to look at the results to see if they concur with Children's Memorial. Chrissy starts up chemo again on Wednesday for 42 more days, and she will start radiation either later this week or next Monday. Chrissy is excited about her benefit on the 10th and plans to attend. Chris reports a local radio station interviewed Chrissy's doctor who discussed her rare disease.
August 2, 2002: POSTED BY FRIEND
Chrissy is home from the hospital today after having her biopsy. She is tired and lethargic. The pathology report won't be available until Monday. Chrissy's chemo was stopped prior to the biopsy after 14 days and won't resume until Monday. Numerous family members are visiting Chrissy today to lift her spirits.
July 31, 2002: POSTED BY FRIEND
Chris called to say Chrissy was having an open biopsy today under full anesthesia at Children's Memorial Hospital. She hasn't started her radiation yet. Instead the doctor at the Mayo Clinic who is also analyzing her results (to see if he concurs with Children's Memorial's course of treatment) wanted to see another tissue sample. Chris is asking everybody to say prayers for Chrissy.
July 28, 2002: POSTED BY FRIEND
Chrissy has finished her twelfth day of chemo. She has been fitted with a mask to use with her radiation treatments which start tomorrow (Monday). The mask will help doctors pinpoint the radiation doses. She will have full head radiation. Doctors are treating her aggressively in hopes of shrinking the tumor. Chrissy isn't very hungry today and has a metallic taste in her mouth from the chemo.
